Press Release: TELEPLEXUS®
FOR IMMEDIATE RELEASE
8 Questions For AddisonsDisease.Net: Where Members Form Lifetime Bonds For
PRINCETON, N.J., Jun. 9, 2009 - -
1. What is AddisonsDisease.Net?
- AddisonsDisease.Net is the largest and most
effective support resource in the world for those living with Addison's
Disease and their caregivers.
2. Who Founded AddisonsDisease.Net and why
does it matter?
- AddisonsDisease.Net was founded by someone who
nearly died from undiagnosed Addison's Disease and was ultimately diagnosed
with Primary Addison's Disease - Complete Adrenal Insufficiency. Our
founder has experienced the uncertainty of continued survival through such events
and symptoms including hypovolemic shock, adrenal crisis, collapses at
home pre-diagnosis, uncontrollable vomiting and diarrhea, hypotension,
dizziness, intolerance to cold, muscle pain and aches, darkening of the
skin, mouth sores and intense salt cravings to name some.
- It matters because AddisonsDisease.Net is
for those who have the disease and for those who care for a person who
does. Nobody knows what it's like to live with Addison's Disease more
than those who live with the disease and our founder has been
a member since day one maintaining a daily presence in the community.
- Our founder, bedridden, was clinically
diagnosed by a physician while at the Medical Center at Princeton,
New Jersey with an ACTH Stimulation test. During this time our founder
couldn't even sit up without getting profoundly nauseated and dizzy.
- Following diagnosis our founder was given
life saving corticosteroids and was not only able to sit up, but also get
out of bed within 2 hours with his IV machine on wheels to use the
3. Why was AddisonsDisease.Net founded?
- AddisonsDisease.Net was founded to connect
those who live with Addison's Disease and those who care for someone
with the disease to one another. Through member interaction, which we
call learning through sharing, members live better lives with Addison's
Disease by being able to communicate with one another. This
communication helps patients and caregivers to better understand what a
person with Addison's Disease goes through and how to best manage the
- AddisonsDisease.Net was founded for our
members and they always come first; in fact, being a member is free and
has been so since the day of our founding 1/1/02.
4. Can caregivers become members of
- Caregivers play a vital role in patient health
and may freely join the community. AddisonsDisease.Net has many
caregivers from all over the world; in fact, many take the time out of their
busy schedules to let their fellow members know what AddisonsDisease.Net
means to them. Here now in one of our caregivers own words as
shared with the members of AddisonsDisease.Net.
An AddisonsDisease.Net Caregiver: "I
have been reading all your posts on this website because my wife was
diagnosed with primary Addisons in August.
First, I want to say "thank you"
to everyone. I have learned so much about this disease and how to
help her learn about medication management, diet and exercise. I
don't know what it feels like to have this disease and in the beginning,
for me, it was rough. Then I subscribed to this website and started
receiving e-mails and it helped me tremendously. I still don't know
how it feels to have this disease but I am better prepared when my wife
tells me she is tired or doesn't feel well and needs rest. It's not
easy (as some of you have expressed in the past when your spouses
have left because he/she could not handle living with you and the
disease). That is the beauty of this website for me. As the
person in my marriage that does not have Addisons, I turn to this website
to gain information and get that BURST of encouragement for myself so I
can help my wife and not add to her stress by being stressed myself."
- An AddisonsDisease.Net Member
5. Will my wellness improve if I join
- Many of our members experience profound
improvements in their wellness as they interact with their fellow members.
Many have formed powerful and meaningful bonds with their
fellow members. Living with Addison's
Disease demands constant attention to a patients well-being and the
members of AddisonsDisease.Net are right there for one another side by side
in their journey together.
6. Where are members of
- AddisonsDisease.Net has members throughout the
United States, United Kingdom, Canada and from such places as Sweden,
Mexico, Poland, Romania, Australia, United Arab Emirates, New Zealand,
Hungry, Iraq, Ethiopia, Italy, South Africa, Lithuania, Croatia, Ireland,
Israel and many more Countries around the world.
7. I'm a newspaper, television, web reporter
or other media outlet so why should I write a story about a rare
- While Addison's Disease is rare everyone
should care about adrenal health, in fact our members must take good care of
themselves to keep their bodies in balance. As a media outlet you
should care about your fellow man and talking about AddisonsDisease.Net with
your audience as it may well lead to a person who is not well to seek out
the possibility that undiagnosed Addison's Disease may be the reason why.
Also, when you connect someone with AddisonsDisease.Net you may play a vital
role in that persons return to wellness as they get the support they need.
Writing about AddisonsDisease.Net will come back to you many times over and
your audience will be most thankful that they were able to reach us in their
time of need through your efforts.
8. Why does someone need
AddisonsDisease.Net in addition to a doctor?
- AddisonsDisease.Net is the perfect companion
to qualified medical care. The diagnosis and treatment of Addison's
Disease is only to be done by a qualified, licensed physician; however, the
members of AddisonsDisease.Net are there to help. AddisonsDisease.Net
has members just diagnosed to living with the disease for many decades.
Our more veteran members can offer solid firsthand experience that a patient
or caregiver can take to his or her doctor.
- When active members ask for support they get
years of experience from their fellow members. Doctor's are busy people and
can benefit greatly from the vast amounts of patient and caregiver
experience that the members of AddisonsDisease.Net have.
For more information on AddisonsDisease.net,
About Addison's Disease
Addison's Disease occurs when a person’s
adrenal glands do not produce enough of the hormone cortisol and, in some cases,
the hormone aldosterone. For this reason, the disease is sometimes called
chronic adrenal insufficiency, or hypocortisolism. The discovery and treatment
of the disease has also been characterized by some as one of medicine’s
greatest achievements in that a patient who has the disease and is hospitalized
near-death can make a meaningful recovery if diagnosed and treated in time.
Jerry Butler, Teleplexus, Inc.