AddisonsDisease.Net on WCBS Newsradio 880
New York
July 27, 2011
WCBS Newsradio 880
& Pat Farnack present the Health & Well Being Report for Thursday,
July 28, 2011. listen
MP3
July 27, 2011
WCBS Newsradio 880
& Pat Farnack present the Health & Well Being Report for
Wednesday, July 27, 2011.
listen
MP3
July 27, 2011
Pat Farnack's
conversation with Jerry Butler who has Addison's Disease about the long
road to diagnosis and his creation of the website to help those with
Addison's. listen
MP3
AddisonsDisease.Net: Ten Years of
Providing Direct Addison’s Disease Support for Its Members
PRINCETON, N.J., June 14, 2011 — In less than
six months, the thriving international support community called simply
AddisonsDisease.Net will celebrate its 10-year anniversary.
AddisonsDisease.Net announces its continued growth and enduring founding
legacy of providing direct Addison’s Disease support to the global
Addison’s Disease community. For all these years, AddisonsDisease.Net has
directly helped thousands worldwide and its members have experienced such
joys as improvements in wellness, childbirth with the disease, outlook for a
brighter future, improved personal relationships, better grades from
students who live with the disease and many other life-enhancing personal
victories.
AddisonsDisease.Net came to be through the
perseverance, personal strength and vision of its founder, who is a survivor
of near-death, hypovolemic shock and once the uncertainty of continued
survival. Its founder has primary idiopathic Addison’s Disease –
complete adrenal insufficiency – and has, since inception, and continuing
to this day, maintained a daily presence in the AddisonsDisease.Net
community. Through proper management of this rare endocrine disease its
founder has remained crisis-free for nearly 10 years despite complete
adrenal insufficiency. Today, AddisonsDisease.Net grows stronger each day
and is home to members from all over the world who help one another live
better with this often misunderstood disease.
AddisonsDisease.Net is pleased to announce
that it is now being used as a reference on the Addison’s Disease page of
Health Library™ from EBSCO Publishing. Health Library is used on hospital
websites throughout the United States and other parts of the world as well
as retail sites, leading academic institutions and other digital media
resources around the world. EBSCO Publishing is a leader in providing
evidence-based consumer health and wellness.
Over these last nine plus years
AddisonsDisease.Net has become the perfect companion to the doctor-patient
relationship. Many doctors have had little experience with Addison’s
Disease. In one of its members own words, “I’ve used this site for about
6 months and gained more knowledge than any MD has given me, and I have 13
MD’s in my family (in-laws) and only one of them has ever had an
Addison’s patient, so they are not helpful.” Members routinely share
AddisonsDisease.Net with their physicians. When a member asks a question,
the responses received from fellow members and what they share with their
doctors are based on hundreds of years of collective firsthand patient
experience with Addison’s. This can and has translated into an improved
doctor-patient relationship translating further into improved wellness for
many members.
When asked, its founder stated: “It is with
great joy and admiration for and on behalf of all of our wonderful members
at AddisonsDisease.Net that we look forward to ushering in our 10th
anniversary with the new year and another amazing decade.”
AddisonsDisease.Net wishes everyone the very best of health.
Contact:
Jerry Butler, Teleplexus, Inc.
1-800-875-9130
info@teleplexus.com
http://www.addisonsdisease.net/
8 Questions For AddisonsDisease.Net:
Where Members Form Lifetime Bonds For
Lifetime Wellness
PRINCETON, N.J., Jun. 9, 2009 - -
1. What is AddisonsDisease.Net?
- AddisonsDisease.Net is the largest and most
effective support resource in the world for those living with Addison's
Disease and their caregivers.
2. Who Founded AddisonsDisease.Net and why
does it matter?
- AddisonsDisease.Net was founded by someone who
nearly died from undiagnosed Addison's Disease and was ultimately diagnosed
with Primary Addison's Disease - Complete Adrenal Insufficiency. Our
founder has experienced the uncertainty of continued survival through such events
and symptoms including hypovolemic shock, adrenal crisis, collapses at
home pre-diagnosis, uncontrollable vomiting and diarrhea, hypotension,
dizziness, intolerance to cold, muscle pain and aches, darkening of the
skin, mouth sores and intense salt cravings to name some.
- It matters because AddisonsDisease.Net is
for those who have the disease and for those who care for a person who
does. Nobody knows what it's like to live with Addison's Disease more
than those who live with the disease and our founder has been
a member since day one maintaining a daily presence in the community.
- Our founder, bedridden, was clinically
diagnosed by a physician while at the Medical Center at Princeton,
New Jersey with an ACTH Stimulation test. During this time our founder
couldn't even sit up without getting profoundly nauseated and dizzy.
- Following diagnosis our founder was given
life saving corticosteroids and was not only able to sit up, but also get
out of bed within 2 hours with his IV machine on wheels to use the
restroom.
3. Why was AddisonsDisease.Net founded?
- AddisonsDisease.Net was founded to connect
those who live with Addison's Disease and those who care for someone
with the disease to one another. Through member interaction, which we
call learning through sharing, members live better lives with Addison's
Disease by being able to communicate with one another. This
communication helps patients and caregivers to better understand what a
person with Addison's Disease goes through and how to best manage the
disease.
- AddisonsDisease.Net was founded for our
members and they always come first; in fact, being a member is free and
has been so since the day of our founding 1/1/02.
4. Can caregivers become members of
AddisonsDisease.Net?
- Caregivers play a vital role in patient health
and may freely join the community. AddisonsDisease.Net has many
caregivers from all over the world; in fact, many take the time out of their
busy schedules to let their fellow members know what AddisonsDisease.Net
means to them. Here now in one of our caregivers own words as
shared with the members of AddisonsDisease.Net.
-
An AddisonsDisease.Net Caregiver: "I
have been reading all your posts on this website because my wife was
diagnosed with primary Addisons in August.
First, I want to say "thank you"
to everyone. I have learned so much about this disease and how to
help her learn about medication management, diet and exercise. I
don't know what it feels like to have this disease and in the beginning,
for me, it was rough. Then I subscribed to this website and started
receiving e-mails and it helped me tremendously. I still don't know
how it feels to have this disease but I am better prepared when my wife
tells me she is tired or doesn't feel well and needs rest. It's not
easy (as some of you have expressed in the past when your spouses
have left because he/she could not handle living with you and the
disease). That is the beauty of this website for me. As the
person in my marriage that does not have Addisons, I turn to this website
to gain information and get that BURST of encouragement for myself so I
can help my wife and not add to her stress by being stressed myself."
- An AddisonsDisease.Net Member
5. Will my wellness improve if I join
AddisonsDisease.Net?
- Many of our members experience profound
improvements in their wellness as they interact with their fellow members.
Many have formed powerful and meaningful bonds with their fellow members.
Living with Addison's Disease demands constant attention to a patients
well-being and the members of AddisonsDisease.Net are right there for one
another side by side in their journey together.
6. Where are members of
AddisonsDisease.Net located?
- AddisonsDisease.Net has members throughout the
United States, United Kingdom, Canada and from such places as Sweden,
Mexico, Poland, Romania, Australia, United Arab Emirates, New Zealand,
Hungry, Iraq, Ethiopia, Italy, South Africa, Lithuania, Croatia, Ireland,
Israel and many more Countries around the world.
7. I'm a newspaper, television, web reporter
or other media outlet so why should I write a story about a rare
endocrine disease?
- While Addison's Disease is rare everyone
should care about adrenal health, in fact our members must take good care of
themselves to keep their bodies in balance. As a media outlet you
should care about your fellow man and talking about AddisonsDisease.Net with
your audience as it may well lead to a person who is not well to seek out
the possibility that undiagnosed Addison's Disease may be the reason why.
Also, when you connect someone with AddisonsDisease.Net you may play a vital
role in that persons return to wellness as they get the support they need.
Writing about AddisonsDisease.Net will come back to you many times over and
your audience will be most thankful that they were able to reach us in their
time of need through your efforts.
8. Why does someone need
AddisonsDisease.Net in addition to a doctor?
- AddisonsDisease.Net is the perfect companion
to qualified medical care. The diagnosis and treatment of Addison's
Disease is only to be done by a qualified, licensed physician; however, the
members of AddisonsDisease.Net are there to help. AddisonsDisease.Net
has members just diagnosed to living with the disease for many decades.
Our more veteran members can offer solid firsthand experience that a patient
or caregiver can take to his or her doctor.
- When active members ask for support they get
years of experience from their fellow members. Doctor's are busy people and
can benefit greatly from the vast amounts of patient and caregiver
experience that the members of AddisonsDisease.Net have.
For more information on AddisonsDisease.net,
email info@teleplexus.com.
About Addison's Disease
Addison's Disease occurs when a person’s
adrenal glands do not produce enough of the hormone cortisol and, in some cases,
the hormone aldosterone. For this reason, the disease is sometimes called
chronic adrenal insufficiency, or hypocortisolism. The discovery and treatment
of the disease has also been characterized by some as one of medicine’s
greatest achievements in that a patient who has the disease and is hospitalized
near-death can make a meaningful recovery if diagnosed and treated in time.
Contact:
Jerry Butler, Teleplexus, Inc.
1-800-875-9130
AddisonsDisease.net Creates Global Community
for Those Living With the Rare Adrenal Disorder
Site Founded by Web Designer Afflicted With
Primary Addison's Disease, Complete Adrenal Insufficiency
PRINCETON, N.J., Jan. 30, 2007 – Teleplexus,
Inc., a Web-design and hosting firm, today announced the five-year anniversary
of http://www.AddisonsDisease.net, an online
source of information and support for people living with the disease that’s
characterized by weight loss, muscle weakness, fatigue, low blood pressure and
darkening of the skin.
The site is believed to be the largest single source of firsthand information on
the endocrine, or hormonal, disorder that affects about one in 100,000 people
and afflicts men and women equally.
Over the years, the site has been embraced by
Addison’s sufferers and their families and now boasts an international
membership base, said Jerry Butler, who founded the site and lives with the
disease. Users, he said, hail from countries such as Australia, New Zealand,
Sweden, South Africa and England.
”Our members experience daily victories in
improved wellness after interacting with one another and learning more about the
disease,” Butler said. “The site helps people living with Addison’s and
their loved ones find empathy. It helps them better understand the disease and
how to cope with it as best as possible.”
He added that the site’s members regularly let
him and fellow members know how the site and its users have effectively changed
their lives: http://www.addisonsdisease.net/addisons.html.
AddisonsDisease.net contains various pages of
focused content on the disease that discuss what the disease is, its causes,
symptoms and diagnosis.
The site offers visitors free membership after
they fill out an online form. Members are emailed a username and password to
access the site’s global membership base. Each member can expect to receive
support 24 hours a day, 365 days a year, Butler said.
Butler stressed, however, that the site should
not be used for diagnosis or treatment of Addison’s Disease. A licensed
physician should be consulted for the diagnosis and treatment of Addison's
Disease.
For more information on AddisonsDisease.net,
email info@teleplexus.com.
About Addison's Disease
Addison's Disease occurs when a person’s
adrenal glands do not produce enough of the hormone cortisol and, in some cases,
the hormone aldosterone. For this reason, the disease is sometimes called
chronic adrenal insufficiency, or hypocortisolism. The discovery and treatment
of the disease has also been characterized by some as one of medicine’s
greatest achievements in that a patient who has the disease and is hospitalized
near-death can make a meaningful recovery if diagnosed and treated in time.
Contact:
Jerry Butler, Teleplexus, Inc.
1-800-875-9130
info@teleplexus.com
http://www.addisonsdisease.net/
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